Organ Donation & Transplantation Data Management
Collaborating to Gain Efficiencies
A more connected and collaborative system is a healthier system. And this is true when it comes to organ donation and transplantation health services, where siloed information and data gaps could impact access to care and treatment outcomes.
Funded by Health Canada, Infoway is co-leading a multi-year project with the Canadian Institute for Health Information (CIHI) to develop a modernized pan-Canadian organ donation and transplantation (ODT) data and performance reporting system by 2026. The two lead organizations are collaborating with provincial and territorial ministries of health, health organizations and the ODT community which includes clinicians, researchers, patients, families, and organ donors.
Project Aims
The Pan-Canadian Organ Donation and Transplantation Data and Performance Reporting System project aims to support improvements in ODT access, care and outcomes across Canada. It will build on existing foundational ODT work, such as initiatives led by the provinces and territories, and those led by Canadian Blood Services and its ODT Expert Advisory Committee.
Infoway and CIHI’s priority work streams within the project are to:
- Develop pan-Canadian indicators and measures for the new ODT performance reporting tool (CIHI).
- Develop pan-Canadian minimum data sets and data standards for deceased donation, living donation and transplantation (CIHI).
- Design, build and deploy a pan-Canadian ODT data repository with data access capability and services for decision-making, policy development, research and innovation (CIHI).
- Develop the future state business and integration architecture enabling the collection and sharing of ODT data (Infoway).
- Support the procurement, deployment and integration of data management systems and the integration of solutions for provincial health service organizations that focus on deceased donation, living donation and transplantation (Infoway).
Improving Information Flow
These solutions will automate and streamline key processes, communication and information flows across the organ donation and transplantation journey and will be integrated to related ODT systems where possible and appropriate. The data collected by the solutions will securely flow to a pan-Canadian ODT data repository that will be managed by CIHI. Canadians will benefit through increased organ donation rates, access to transplantation services and improvements in the quality of life for organ recipients.